Thursday, September 22, 2022

Same Blog With a New Look!

Hi Ya'll! It's still me with my same ole self but I decided that my ole blog needed some freshening up so, here it is. I hope you find it a little more upbeat with the new colors and the crazy pic of myself in the background. 

I'll still be posting about gadagets and gizmos that help me with my everyday life and how to make things easier and helpful ways to help myself. I'm an Amazon Associate which means if you click on the links in the blog and happen to purchase an item then I will get a tiny commision for that. It's a great way to help support me so I can continue to do research for the EDS communitiy and all the other commuities of all the other disorders that we EDS people tend to have. 

I will be traveling soon in a van that I hope to live in while traveling. As of now it’s broken down!  I'm a missionary and I have a call of God on my life to go and minister and teach the Good News of Jesus Christ to the nations and here on the home front as well. Living in a van is an experince that I have loved and I have done very well physically, mentally and emtionally while living in the van, other than the time I fell out of the van and broke both of my legs. Well, that's a story for another day, but for now I want to tell you that I love van life because most everything I need for the day is right within reach of me and my set up is different than most van lifers that I see but then again I am different than most people I know other than my EDS peeps. GO EDS PEEPS! 

I hope you take some time to click around on the links on the blog and see what all I'm up to. Photography is my passion and I love it and I take all of my photos from my car window, meaning I'm in the car when I'm taking the picutres. I'm sure this is what will get me on Good Morning America one day for being the crazy lady who makes a living taking photo from her car. Hey, we can all dream!

So, the links will take you to some of my other blogs and to my shops where I sell my photos and where I sell T-shits and greeting cards and tote bags and puzzles and all kinds of stuff with the photos on them that I take. Of course you will see me posting when I put new things in the shops because a girl has to make a living somehow.

Also I'll be posting about van life and how I deal with that having EDS and how I handle dr appointments and such. It should be interesting and I really hope to inspire you to get out and try something new and us your imagination to step outside of your box, even if it's just a few minutes every now and then, to explore what passions you have that you could still participate in or find a creative way to fullfill those dreams you've always had.

Have blessed dreams about your future and together we can encourage each other. 

I promise that I'm going to be posting on a more regular basis here from now one. That should be one or two posts ever few weeks about EDS and all the things I'm learning and researching. 


This is my van that I named Bean Dip. I love him 
soooo much even though he is old and scared up, 
hmmmm that's sounds like me, old and scared up.... lol 

This is this inside of Bean Dip when I first got him. Not too bad for an old guy. 

My friend hiding behind the arm rest of my seat. 
We were checking out the interrior lights. 
They work well!

That's Allie hanging out with Bean Dip while her 
Dad was busy taking out the seats  so I would have 
room to fix up the van the way I wanted it to be. 

So Bean Dip is old, like I said, and his carpet is well used, but this is the 
recliner that I got to use in the van. It's nice to be able to sleep in it like 
I do in the house and then I do all of my compture and editing 
work from my recliner so I feel like I'm at right at home. 
Of course I still have to put all the things in that I need for traveling..... 
more to come later. 

Wednesday, September 21, 2022

Having less work to do in the kitchen are such a blessing to me!

 Things that help me having less work to do in the kitchen are such a blessing to me. With the cooler weather starting to show up, well, I hope it's going to soon, I will be ready start eating warm soup! 

Not that I eat cold soup, but the cool weather calls for extra warmth and making soup, either from some wild thoughts of what sounds good for soup or just popping open a can to heat some soup up my main dilemma is what to eat the soup out of. 

I use paper plates and plastic wear all the time because living alone there is no one to do the dishes after a meal so for me I have to do what is best for me in order to keep tidy kitchen. Paper and plastic wins all the way around and now my new favorite item that I'm adding to my make it easy for me list are soup containers that don't need washing up.

I searched high and low looking for something besides a bowl or a cup to eat soup out of and sometimes I eat just beans and corn bread and I like this same idea for eating oatmeal and cereal with milk. I think I could even pour my flavored hot drinks in these and even have a lid to keep it warm until I'm ready to drink it. 

What am I using for all of this yumminess? These!!!!!

These have been a game changer for me! I'm so excited to share these with you. I pour whatever it is that I'm planning on eating out of it and stick it in the microwave to cook it up. It's a one container cook and eat situation which makes less work for me in the kitchen!!!! 

Please click on the link to order these to try them out for yourself. I would love to hear what you think about them as well. 

Here's to happy warm soup weather coming!!!

Friday, September 9, 2022

Ehlers Danlos Syndrome And How PTSD And The 9/11 Anniversary Has Affected Me

 You know that having Ehlers Danlos Syndrome opens up plenty of opportunities for emotional mayhem on a daily basis. That is because of the organic depression that EDS offers and the histamine overloads that Mast Cell Activation Syndrome gifts us with if you have that, not to mention the offerings of Dysautonomia and POTS and all the other bodily disorders that EDSer's go through. Daily life for 'our kind' is tough for sure but as you know if you are reading this and you have EDS then it's common for our bodies to react in harsh ways and it never gets easier but instead it gets harder and harder with each episode of stress or anxiety or depression or even a sneezing fit, - typed with a dramatic flare and sarcasm implied. 😁 

{To learn more about the above mentioned disorders look in the archives}

The anniversary of 9/11 is one of the bigger events in my life that cause extra stress and sadness for me. I had moved to NYC the day before 9/11. Maybe I got there then because I have poor timing skills or maybe it was because that was exactly when God wanted me to be there. It was a hit the ground running experience that changed my life in many ways. 

I didn't know at that time that I had EDS much less had I even heard of EDS and I honestly thought that all of my health issues were due to me being overweight. I'm not even sure why that matters for the point of this post, but thinking about that today and knowing how stress causes all kinds of things to flare up in our EDS bodies I have to be keenly aware of what I take in on TV and social media during the day of and the days leading up to the 9/11 anniversary. 

I'm a missionary and going to NYC was a stopping point for a few months before going to Nigeria for who knew how long. Well, that was the plan anyway....then 9/11 happened and travel to Nigeria became impossible at that time so that trip was delayed for a few years. As my EDS has progressed I am not as able bodied to live in a 3rd world country but I can still reach people all over the world and really by having the internet I can reach more people than I could have ever met in person. 

Why am I explaining that in this post? 

I'm doing so because I want to share my experience about 9/11 and the stress and sadness that I experienced, not that it was more or less than what the rest of the world went through, but for our purpose of supporting each of us Zebra's together, and to help those who need peace in their lives or are extra sensitive to big events like this one to know that they are not alone when remember 9/11 and also to share the Good News of Jesus Christ that brings Hope to us! 

With that said, take a look at my video and if you are interested then follow the link to my other blog to read the rest of the story!

The link to my other blog can be found on YouTube in the description under the video.