Monday, May 6, 2013

This Is a Message for Coaches, Trainers And Parents of Athletic Children.

That athlete of yours who is extremely flexible may need to be checked for Ehlers-Danlos syndrome.

People with Ehlers-Danlos Syndrome experience many different symptoms, but
please be aware of these characteristics:
• Joint hypermobility
• Frequent dislocations and subluxations
• Early onset of often debilitating joint pain with or without swelling
• Normal X-rays and MRI despite chronic pain
• Fragile skin that bruises easily
• Poor wound healing
• Cardiovascular* and gastrointestinal issues
*Athletic children who are extremely hypermobile because of a connective tissue disorder should be checked for cardiovascular complications. It is a common misconception that an EKG is enough, but a hypermobile child actually needs further imaging (echocardiogram, CT scan). If a child has Ehlers-Danlos Syndrome and has had these imaging studies, and been cleared through a knowledgeable cardiologist, they may be able to continue playing sports. They are encouraged to do mild to moderate strength training in order to preserve joint stability.

For more information, please contact the Ehlers-Danlos National Foundation

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